WEEKLY WEB REVIEW – WEEK 30

 Check out the latest news about proton therapy: this week, find out how this state-of-the-art treatment modality is giving hope and helping children starting their life.

 

FIGHTER JASON TO TRAVEL TO AMERICA FOR PT

 

Former war hero and father of three is expecting to fly to America for his next battle for health. He has been fighting against a brain tumor for years and now needs proton therapy to prolong his life.

44-year-old Jason Evans from the UK was diagnosed around five years ago and has undergone numerous treatments to reduce the size of his most severe grade 3 brain tumor. Last January, he and his family were told that cancerous cells were back and that he needed a trip abroad for proton beam therapy. They launched a “Just giving” to cover the £75,000 cost of his pioneering treatment, and have since then been overwhelmed by the support of fund-raisers and well-wishers. Jason said he hoped to be given a date in the next two weeks for the proton beam therapy treatment he hopes will successfully tackle his tumor. He said: “I’m hoping to have a conference call with the doctor out in Oklahoma in the next couple of weeks and that should confirm when we’re flying out.”

Source: http://www.rotherhamadvertiser.co.uk/news/99136/fighter-jason-to-travel-to-america-to-battle-cancer.aspx

 

 

CHARITY FOOTBALL MATCH RAISING FUNDS FOR CANCER KID

A host of celebrity faces from a local football team have put their best foot forward to raise £2,000 for poorly 6-year-old Guy Ryan from the UK, who was diagnosed with a brain tumor when he was 12 months old.

This week, Guy flew out to America for pioneering proton therapy following rounds of chemotherapy treatment and more than 20 operations in the UK.  The treatment is being funded by the NHS and will be carried out in a hospital in Oklahoma. The family hopes it will freeze Guy’s tumor and to prevent it from growing back. The football match was staged this week to help the family who has been relentlessly fundraising for the costs associated with the 9-week trip and to allow them to be at Guy’s bedside.  The £2,000 will go towards Guy’s appeal, The Christie Proton BeamTherapy Appeal and Joining Jack. His mom, 33, said: “I am so overwhelmed by the support we have received, people have been unbelievably generous and it is very humbling to know that we have got amazing friends and family. The event was great and everybody who came really enjoyed themselves.” Any money left over from the trip will enable the family to make improvements to their home to give Guy a better quality of life with the facilities he needs. To donate to Guy’s appeal go to: www.gofundme.com/qpart3

Source: http://www.leighjournal.co.uk/news/13489469.Charity_football_match_raised_funds_for_poorly_youngster/

 

 

PARENTS PLEA FOR HELP TO SAVE TODDLER’S LIFE

The family of 2-year-old Kyle Jones, who has already lost one eye to cancer, is making an emotional appeal to save his remaining eye and prevent the disease from spreading further.

Little Kyle from south east London was diagnosed with retinoblastoma in March, a condition in which a tumor grows in the retina. About 40 cases of retinoblastoma are diagnosed in the UK each year, mostly in children under 5 years old. Kyle is currently undergoing chemotherapy in London, but his family wants to take him to the United States to get 11 weeks of pioneering proton therapy treatment at the Jacksonville Proton Beam Therapy Center in Florida. The family should leave for the States in three weeks, but they need to raise £8,000 to do so. His mom is appealing to help raise the funds they need. “Sometimes I think it’s so unfair that my little boy has had this cancer but you have to keep faith that he will get through it,” she said. “It’s lifesaving treatment. We desperately need the help of the general public and our community. I’m asking the community to help in any way they can. I know money is tight right now, but even if it is to donate £1 every little helps.” To help Kyle, visit http://kyle-robinsonjamesjonesfund.com.

Source: http://www.voice-online.co.uk/article/parents-plea-help-save-tot’s-life

WEEKLY WEB REVIEW – WEEK 29

Check out the latest news about proton therapy: this week, find out how this state-of-the-art treatment modality is helping people from all horizons and giving them back their life.  

 

DESTINY’S CANCER IN REMISSION

 

8-year-old Destiny Dye, from the UK, was diagnosed with Ewing’s sarcoma bone cancer last year, which only affects 30 people a year. Today, the youngster is in remission.

After receiving chemotherapy, Destiny underwent an operation in November last year to remove a tumor from her head, described as incredibly rare. Then her family learned that she needed specialist proton beam therapy, not yet available in the UK. After spending two months receiving her treatment in the United States, tests revealed last June that the disease was gone. Destiny’s family now hopes to raise awareness of her condition. Her mom, 27, said: “We are over the moon that she is now in remission. I’m so proud of her because she has been through such a difficult journey – the whole family has.”

Source: http://www.thecourier.co.uk/news/local/dundee/family-over-the-moon-at-news-brave-destiny-s-cancer-is-in-remission-1.889110

 

PT SAVES 500TH LIFE

The word cancer can turn the life of anyone upside down within seconds. But for survivors like Lou Lovingood, it brings out a warrior who refuses to give up.

“I’m 63 years old. I have a lot of living I want to do,” she said. Cancer has always been a part of Lou’s life, as her mother, uncle and grandmother died of it. So when she found out she had bilateral breast cancer, she wasn’t exactly shocked and didn’t let her diagnosis slow her down. She chose to go to the Provision Center for Proton Therapy: “the amount of radiation I would get with photon therapy would be devastating to my heart and lungs because I had it in both breasts,” she said. Now Lou is the 500th graduate of the PT program. Surrounded by her favorite people, Lou had only one message: “If it’s caught early, it can be treated and handled a lot easier than if you wait.” She is proof that the battle can be won and proof why you should never stop fighting.

Source : http://www.wbir.com/story/life/2015/07/10/and-finally-proton-center-celebrates-500th-graduate/29973101/

 

 

BRAIN TUMOR BOY TO HAVE PT IN THE US

A family from England has won funding from the NHS to go to America so their little boy diagnosed with a brain tumor can receive specialist proton therapy treatment.

Tommy Lines was just 3 years old when an MRI scan for a visual impairment showed a golf-ball sized tumor in his brain and he was diagnosed with a very rare grade 4 cancerous tumor. After 3 major brain surgeries over an 18-month period, he now requires radiotherapy and aggressive chemotherapy. As traditional radiotherapy could leave him brain damaged, Tommy’s parents asked the NHS to fund his proton therapy treatment in America. After a 5-week wait, they’ve just learned it had been accepted. However, Tommy’s parents still need to raise money to cover the everyday cost of their 10-week stay with Tommy’s big sister, unpaid work leave, mortgage and bills, as when treatment is finished in February 2016 at least, they will still have a home to bring their children back to. Friends and family have set up a CrowdFunding website to help them: http://bit.ly/1Hn3bow.

Source: http://www.heart.co.uk/fourcounties/news/local/mk-boy-to-have-proton-beam-tumour-therapy/#QLKWLsK07y3GlM6D.97

WEEKLY WEB REVIEW – WEEK 28

Check out the latest news about proton therapy: this week, find out how this state-of-the-art treatment modality is gaining ground and saving more and more lives worldwide.

 

SISTER RAISES CASH TO SEND LITTLE BROTHER FOR PT

2-year-old Noah went to America for proton beam therapy after his 26-year-old sister Jade raised nearly £3,000 on a GoFundMe page to help fund the trip.    

Noah was diagnosed with a rare form of cancer called rhabdomyosarcoma when he was just 16 months old. He was immediately started on chemotherapy and underwent major surgery in February of this year to remove as much of his tumor as possible. With Noah needing 31 sessions of PT to target the remaining cancerous cells, the family were daunted by the cost of travelling and living in Oklahoma for ten weeks while he underwent treatment. But with the help of Jade and her charity efforts, Noah was able to receive his treatment in America. Jade said: “Noah was able to have a graduation ceremony and got to ring a big bell indicating the end of his ordeal. This was a very emotional day for my family but Noah loved being the center of attention, smiling all the way.”

 

Source: http://www.liverpoolecho.co.uk/news/liverpool-news/croxteth-sister-raises-cash-send-9575613

 

5 YEAR OLD SURVIVES RARE TUMOR

Jayden Stone is incredibly lucky to be alive after surviving a rare and aggressive brain cancer the size of a golf ball when he was a toddler, for which he was given a less than 10% chance of survival.

It was only his mother’s remark that neighbors had noticed Jayden walking with his head tilted to one side that prompted his doctor to order a CT scan as a precaution. Then 20 months old, he was diagnosed with an atypical teratoïd rhabdoïd tumor, a childhood cancer already so big he would have died within 3 weeks if it had not been found. He was given a less than 10% chance of survival even only after a difficult course of treatment including surgery, chemotherapy and proton therapy in the US. Now 5, he remains cancer-free but like all families of children treated with aggressive cancers, the Stones know there is no such thing as “being out of the woods”. Mrs Stone is a strong supporter of childhood cancer research groups, including Sydney’s Children’s Cancer Institute, which is raising awareness about the need for continuing research. “Jayden is only alive because of the research but we need continued support because children are still dying,” Mrs Stone said.

 

Source: http://health.thewest.com.au/news/2135/lucky-jayden-survives-a-rare-tumour

 

UK’S FIRST PT CANCER TREATMENT CENTER

Proton Partners International Limited (PPI) has started work at Celtic Springs Business Park in Newport, where the first proton therapy cancer treatment center will be built in the UK. The center is due to be operational next year.

Senior management from PPI has started work at the Newport site. “Today is a major milestone for cancer treatment,” said Mike Moran, chief executive officer of PPI. The Newport center is the first of 3 PT centers that will be built by PPI in the UK. The other sites will be in Northumberland and London. PPI has appointed global partners to provide class-leading clinical equipment and innovative technology solutions: IBA (Ion Beam Applications), the world’s leading provider of PT solutions for the treatment of cancer, has been selected to install its single-room PT system, and Philips has been appointed to deliver software & technology tools and provide big bore CT scanners at each center and a PET CT in the Newport center.

 

Source: http://www.walesonline.co.uk/business/business-news/work-starts-newport-uks-first-9619118

WEEKLY WEB REVIEW – WEEK 27

Check out the latest news about proton therapy: this week, find out how this state-of-the-art treatment modality is giving a shot at life to children from all over the world.

6 YEAR OLD RESCUED FROM BRAIN CANCER

When young Erin Birdsey walked into an optician’s office last July, her mom’s biggest concern was how she would persuade her that it wouldn’t be the end of the world if she needed glasses.

When Erin started complaining of headaches and feeling sick, her GP sent her to an ophthalmologist to have her eyes checked. The doctor noticed that one eye looked inflamed as something was pressing against it, and sent Erin straight to the hospital. Within 24h she was diagnosed with a brain tumor and had a 10-hour surgery to remove it. Biopsy results and an MRI scan a week later revealed a grade 2 ependymoma, a type of cancer of the cells that line fluid-filled spaces in the brain and the spinal cord. Only half of children diagnosed with it live for more than five years.

To remove any tiny cancer cells remaining, the oncology team thought she should be put forward for proton beam therapy. To her parents’ overwhelming relief, Erin’s application was approved and a week later, in September last year, they were on a plane to Florida. Six months into her treatment, she is now back to school with few signs of what she has been through. Erin has just celebrated her seventh birthday and her first scan came back clear.

Source: http://www.dailymail.co.uk/health/article-3143625/NHS-cancer-therapy-little-Ashya-King-s-parents-fought-finally-comes-NHS-bought-wrong-miracle-proton-beam-machines.html?__tw_private=1602754241

 

GRANDMOTHER’S DAREDEVIL DESCENT FOR BRAIN TUMOR CHARITY

Daphne Llewellyn, 66, has abseiled down the side of Portsmouth’s Spinnaker Tower, UK, which stands more than 300 feet tall, and clocked the fastest descent of the day.

It is not the first daring stunt the British gran has completed. Last year, she also completed a skydive. The daredevil pensioner abseiled down Portmouth’s landmark tower along with 40 other people in a challenge to raise funds for the pioneering UK charity, Brain Tumor Research. Daphne’s granddaughter, Holly Davies-Timbrell, was diagnosed with an inoperable brain tumor in June 2009 at the University Hospital of Wales. Daphne said: “Holly is now 19 and about to start her first proper job in the print and design department at the hospital where she is being treated, although she faces surgery to drain a cyst in her brain. She may also undergo proton beam therapy later in the year to shrink the tumor, which was shown to be growing on her latest MRI scan.” Daphne and her family have already raised £30,000 for Brain Tumor Research.

 

Source: http://www.westerndailypress.co.uk/Gran-Daphne-s-daredevil-descent-brain-tumour/story-26443351-detail/story.html

 

BRAVE BABY LEO FLYING OUT TO AMERICA FOR PT

Brave Leo Burton from England, 8 months old, is on his way to America to begin nearly three months of potentially life-saving treatment, as he is battling an extremely rare and aggressive form of cancer in his bladder.

Leo was just 4 months old when his parents discovered a blood clot in his diaper. Following numerous tests, he was diagnosed with embryonal rhabdomyosarcoma. After bouts of chemotherapy, Leo’s best hope for a cure is specialist radiotherapy, not yet available in his country. He will thus undergo 30 sessions of proton therapy in America, each requiring a general anesthetic, as well as additional chemotherapy sessions. Although Leo’s treatment will be funded by the NHS (£120.000), his family needs additional £6.500 to cover the cost of their stay in America. They launched a fundraising campaign called “Hands on for Leo” last month and reached their target within 24h. The fund has now reached nearly £24.000, and they want to use the campaign to support all the charities that are helping them. Back in the UK, Leo will undergo more chemotherapy and will be monitored regularly to see if the treatment has worked. He will also be assessed to see what impact the treatment has had on his fragile body and will eventually need surgery to replace his bladder. To make a donation visit www.gofundme.com/handsonforleo

 

Source: http://www.exeterexpressandecho.co.uk/Brave-Devon-baby-flies-America-today-begin-cancer/story-26812241-detail/story.html

WEEKLY WEB REVIEW – WEEK 19

Check out the latest news about proton therapy: this week, find out how this state-of-the-art treatment is giving hope to families of sick children and teenagers from all over the world.

TEENAGER WITH STRONG WILL TROUGH CANCER

For years, Kasey Harvey had long, dark hair that cascaded down her back. That was before the 13-year-old learned a new word : rhabdomyosarcoma. She is now focused on fighting against her aggressive cancer.

Kasey was diagnosed with a fast-moving form of cancer called alveolar rhabdomyosarcoma that was found in the maxillary sinus below her left eye. After receiving the diagnosis in November and learning that chemotherapy and proton radiation treatments would eventually cause her hair to fall out, she took control. “She said, ‘Take it off. I want it shaved,’ ” says her mom. Now Kasey, 13, has embraced bald. Sometimes she’ll even sprinkle glitter on her head before going out, just for style. A little more than halfway through a scheduled 42 weeks of chemo and proton radiation treatments that have left her with a swollen and bruised face and bouts with pain, weakness and vomiting, Kasey is taking a proactive approach, using a heavy exercise regimen and diet to stay as strong as possible. So far, the results have been encouraging. The tumor has shrunk and there has been no evidence the cancer has spread.

Dr. Atman Pai, one of the faculty treating physicians at the Scripps Proton Therapy Center who has worked with Kasey, says : “I think it’s very important,” he says. “It can sometimes be easy to lose sight of the holistic issue here in terms of cancer therapy, but looking at everything they did.”

 

Source : http://www.utsandiego.com/news/2015/may/05/courage-through-cancer-strong-willed/

 

US UNIVERSITY OFFERS LIFELINE FOR TEENAGER WITH BRAIN TUMOR

A university in the US has come to the rescue of Taisha McKinnon, a teenager from Australia, after her application for overseas medical treatment for a brain tumor was denied by her country’s government.

Taisha’s family feared for her future after her application to travel to the US for radical proton therapy was knocked back. Doctors warned Taisha risked bad side effects if she had radiotherapy, the only treatment available in Australia for her type of condition. But a draft finding said authorities planned to refuse to fund her trip to the US for proton therapy. This week the University of Florida’s Health Proton Therapy Institute said it would put for the 17-year-old in its medical research trial, meaning she will get the treatment she needs, worth about $250,000, at minimal cost. “Not only do I get help, but I can help others through research,” Tashia said.

 

Source : http://www.news.com.au/national/western-australia/us-university-trial-offers-lifeline-for-perth-teenager-with-brain-tumour/story-fnii5thn-1227331934552

 

SUPPORTERS RALLY AROUND SICK CHILD FROM CANADA

Supporters of a family with a child facing a battle against cancer rallied around them last weekend at a charity golf tournament at Twin Lakes. Almost $3,000 was raised for 5-year-old Myla who was diagnosed with rhabdomyosarcoma a few months ago.

On Sunday, the family flew to Seattle for their first consultation taking place at the Seattle Cancer Care Alliance Proton Therapy Centrer. “We had a long day, but it went well,” said Myla’s dad. “The staff at the proton center are fantastic. Our cabbie even drove us for free this morning. Very nice people here in Seattle. We fly back to Penticton for a couple of weeks then we have six weeks head on with treatment.” This weekend Levesque’s slo-pitch team, the Smokin’ Aces, are hosting the Little Miss Myla charity tournament at Lions Park. There will be silent auctions, raffles, 50/50 draws, food and a beverage garden with all the funds going to the family.

 

Source : http://www.bclocalnews.com/community/300840561.html